ICD D56.0ORPHA:846α-Thal

Alpha-Thalassaemia

Alpha-Thalassaemia is an inherited blood disorder caused by mutations in the alpha-globin genes, resulting in reduced or absent production of haemoglobin alpha chains. It has high prevalence in Southeast Asian and Mediterranean communities in Australia. Severity ranges from silent carrier status to severe haemolytic anaemia (HbH disease) and the life-threatening Haemoglobin Barts hydrops fetalis.

179
Articles
6
Trials
Updated
5 April 2026
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Common Questions

What is Alpha-Thalassaemia?

Alpha-Thalassaemia is an inherited blood disorder caused by mutations in the alpha-globin genes, resulting in reduced or absent production of haemoglobin alpha chains. It has high prevalence in Southeast Asian and Mediterranean communities in Australia. Severity ranges from silent carrier status to severe haemolytic anaemia (HbH disease) and the life-threatening Haemoglobin Barts hydrops fetalis.

How many clinical trials are available for Alpha-Thalassaemia?

RareWays currently indexes 6 clinical trials for Alpha-Thalassaemia, of which 3 are actively recruiting. Trial availability changes as new studies are registered — check the trials tab for current status.

Where does the research data for Alpha-Thalassaemia come from?

RareWays aggregates research from PubMed, Europe PMC, OpenAlex, and ClinicalTrials.gov. Data is updated regularly by Rocky, RareWays' automated research engine. All articles and trials link directly to their original sources.

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This information is for general awareness only.

For guidance specific to your situation, please speak with your healthcare team.