Fibrodysplasia Ossificans Progressiva — Research Summary
Printed from RareWays (rareways.com.au) on 5 April 2026
For general awareness only. Not medical advice. Discuss all care options with your healthcare team.
5 Most Recent Research Articles
- 1.
Role of Nutri-Score and Eco-Score in shaping consumers' sensory expectations and purchase intention: An eye-tracking study on animal- and plant-based foods.
Andreani Giulia et al. — Nutrition (Burbank, Los Angeles County, Calif.) (1 May 2026)
https://pubmed.ncbi.nlm.nih.gov/41592437/
- 2.
The sequential mediating roles of psychological flexibility and maladaptive cognitive emotion regulation between illness perception and fear of cancer recurrence in gastrointestinal cancer patients.
Cai Lei et al. — Acta psychologica (23 March 2026)
https://pubmed.ncbi.nlm.nih.gov/41875643/
- 3.
Fear of disease progression and diabetes self-care: Nonlinear associations and moderation by perceived task difficulty and illness perceptions.
Park Sieun et al. — Journal of psychosomatic research (18 March 2026)
https://pubmed.ncbi.nlm.nih.gov/41865433/
- 4.
Activation of PPARγ redirects fibro-adipogenic progenitors to replace ectopic bone with fat in models of fibrodysplasia ossificans progressiva and trauma-induced heterotopic ossification.
Koirala Pratik et al. — bioRxiv : the preprint server for biology (16 March 2026)
https://pubmed.ncbi.nlm.nih.gov/41852699/
- 5.
Effects of dual front-of-pack nutrition and sustainability labelling on consumer understanding, purchase intentions, food choices and willingness to pay: A systematic literature review.
Sengupta Agnivo et al. — Appetite (11 March 2026)
https://pubmed.ncbi.nlm.nih.gov/41825695/
Clinical Trials — Currently Recruiting (Australia)
Ask your doctor whether you or your child may be eligible for any of these trials.
- 1.
To Assess the Efficacy, Safety, and Tolerability of INCB000928 in Participants With Fibrodysplasia Ossificans Progressiva
Recruiting — Phase 2 — Incyte Corporation
https://clinicaltrials.gov/study/NCT05090891
Source: RareWays research directory. Data from PubMed, Europe PMC, OpenAlex, ClinicalTrials.gov.
Always verify information with your healthcare team before making any decisions about your care.
Fibrodysplasia Ossificans Progressiva
Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic condition caused by ACVR1 mutations, causing muscles, tendons, and ligaments to progressively turn into bone. Any injury or surgery triggers new bone formation. Palovarotene, the first approved treatment, reduces the volume of new heterotopic bone.
Most Recent Research
OBJECTIVE: Front-of-package (FOP) labeling schemes could be adopted to provide consumers with timely and credible information and to promote healthy and sustainable food consumption. In addition, when defining healthy and sustainable food behaviors, international authorities agree that reducing meat consumption could be of benefit to both human health and the planet. Given the increasing interest in plant-based meat alternatives (PBMAs) and FOP labels, we investigate in this study how interpretative FOP labels-the Nutri Score (NS) and Eco Score (ES)-impact consumers' sensory expectations and purchase intention of a meat product and its plant-based counterpart. METHOD: Using eye-tracking data, we analyzed whether and to what extent attention to these labels affects participants' behaviors (n = 76). In addition, to explore differences across consumer segments we divided our sample based on the Meat Attachment Questionnaire (MAQ) to classify subjects according to their bond towards meat consumption. RESULTS: Results showed that attention to the NS or ES did not impact participants with higher MAQ scores (i.e., with a more positive bond toward meat consumption); however, sensory expectations of both the meat and plant-based product were influenced by consumer visual attention for participants with a lower meat attachment level (i.e., with lower MAQ scores). Specifically, we found a positive relationship between the attention paid to the positive ES of the plant-based product and the expectation of liking it (abreviated as "expected liking"), and a positive interaction between the attention paid to the negative NS of the animal product and its expected liking. CONCLUSIONS: We show that favorable sustainable labels can positively shape consumers' expectations for PBMAs, while negative labels do not undermine expected liking or purchase intention for animal products, and discuss our results to provide insights for future research and implications for both food industries and policymakers.
This information is for general awareness only.
For guidance specific to your situation, please speak with your healthcare team.